The point of this blog...my kid, of course.

Chamberlyn's T1 Diabetes D-Day (Diagnosis Day) was October 19, 2010. I decided to start writing her story almost nine months later because managing her diabetes is what our family does best. We have our "highs" and "lows" when dealing with this confounding autoimmune disease, and I hope our posts can provide some insight on the daily life of a person with T1 diabetes.
Showing posts with label Diabetes. Show all posts
Showing posts with label Diabetes. Show all posts

Sunday, December 4, 2011

Disney & Universal Trip!

Sorry for not posting on Miss Priss for so long. We have been busy this fall - dance, football, soccer, jobs, LIFE!

On the T1 front, we have decided to put off the pump for awhile. Finances aren't where they need to be to be able to get her one, so we're waiting until we feel a bit more secure. We're fine right now with MDI and Cham doesn't mind keeping to her routine (nor do we!). Her numbers are WONDERFUL!
Aside from our Disney trip, she has maintained a pretty good average. Our next Endo visit is on December 14th!

ORLANDO!
Overall, we had a nice trip despite her numbers creeping pretty high at times. She would get frustrated and cry about them, but we reminded her about not knowing exactly how many carbs she was eating at meals. Occasionally she would be on target and that provided some relief to all of us. Even Colton was getting upset by her numbers!

Wait times and rides:
We really loved the Guest Accomodation Card (GAC) that Disney provided for us because her numbers were so unpredictable. It allowed us to get on rides through Fast Pass entrances and we barely waited at all. It was a great relief to be able to get on and off rides within a 30 minute or less timespan. We did all 4 parks in one day on our last full day at Disney because that pass allowed us immediate access and low wait times. Thank you, Disney!! At Universal, we stayed on site, so our hotel card was our Fast Pass. There were a few rides that we waited and had to leave our stuff in lockers (which made me nervous) where Cham complained of needing a snack and I had nothing! After experiencing that, I went to Guest Services and they gave me a card to give the Universal crew member working the ride and they would provide a "return time" for us if the wait was long and we had to lock up our stuff. This really didn't help much because we had fast passes onto the rides, so we just made sure she was good before getting in a line.

Carbs and other stuff:
Of course, having Mop there helped tremendously. With three adults discussing and soundboarding carbs and meals, you can't go wrong! Things and ideas I stole from others for the trip: Ask hotels for a "sharps jar," bring The Calorie King book, eat what you know carbs on already in order to better guesstimate, bring plenty of diabetic supplies - extra strips, alcohol swabs, syringes, lancets, additional meter and ketone strips, and (what I forgot about) INSULIN! I should've known that her high numbers would require MORE insulin and I should've brought an extra bottle of Novolog (fast acting). I was constantly nervous that I would drop the bottle in the park bathrooms and we would be out of luck. I won't forget an extra bottle next time. We also carried a really sturdy backpack with plenty of room and pockets into the park. In the backpack we put: her test kit, insulin in a FRIO pack, syringes, snacks for highs and lows, water bottles, the Calorie King book, my stuff - camera, wallet, etc. Yes, they do check the bags before you go into each park, but they never said anything about her stuff or the food.

We will definitely return despite the carb guessing! We had a lot of FUN!!

Friday, July 22, 2011

Summer "HIGH" lights

Cham's had a great summer despite the 'betes! Yes, vacations have sent her father and I into insanity mode due to the flux of her BG levels, but she recovers and prevails every time.
We found out from More than Cards that one of her card designs was chosen as an "alternate" and will make its debut on the website in August. We are excited to be able to order cards with her hand-drawn design soon!
Cham has been a dancer at the same studio since she was three. She is now ten and has been on the Competition Team for her studio for the past three years. We traveled to Chicago for her team this summer and they did really well! I can't tell you how frustrating it is to have to eat out most meals and depend on restaurants for carb counts. Most of the time the waiter/waitress looks at you like you're some crazed dieter when you ask for the nutrional guide. It surprises me, more often than not, when the manager of the restaurant doesn't understand T1 and suggests low-calorie plates or items, when I know I've said "I need the CARB count."